When she first started experiencing discomfort, Khaliah, from Georgia, US, was told she had the flu but one night she woke up to agonising pain as her skin fell off. Her hair and fingernails had also fallen out and her body covered in open wounds.
Khaliah is now raising awareness of Stevens-Johnson
Syndrome, the condition which nearly killed her
"It was a shock to see that... all my hair had come off. I didn't have any fingernails. When
I realized all my hair was gone, I cried," Shaw wrote on her blog.
"When my friends came to see me, I cried. When I realized I couldn't
walk, I cried. When I left the hospital, I cried. EVERY time I look hard
enough in the mirror, I cry. Crying has become my thing because…I don’t
know what else to do! I literally feel like I woke up in another persons body.
"It breaks my heart when people stare at me. It tears me up when I sense that people are weirded out by my appearance. If
I choose to stop living, then SJS wins. And we ALL KNOW that is NOT
happening! Not today. Not tomorrow. So it’s time to put on the armor of
God and fight. HARD."
"It still haunts me to think about everything they did to me while I
was in hospital. I can still hear the IV machines beeping. I never want
to end up in the burn unit EVER again. There are still things I avoid to this day because it
reminds me of that time. And no amount of discomfort is worth getting
SJS again. NONE.”
Shaw hopes to return to university to continue her graduate studies in
public health, but told Fox Los Angeles: "The biggest thing is I would
love to have my vision back."
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